Friday, May 22, 2009

Poor Little Peanut

My Peanut really was born with the brunt of minor issues that seem to pop up every now and then. She is the baby that was born with the puffy, strawberry shaped hemangioma on her left cheek and the hairy nevus on the back of her arm.

Last year at a routine doctor's appointment, it was pointed out that her "girl parts" were fused together. This is known as labial adhesion. Basically, labial adhesion is when the labia sticks together and doesn't open up. Over time, mature skin cells can actually form over it. Because she is only two years old, her body is not manufacturing estrogen making her more like a post menopausal woman. (Interesting enough, this wasn't a problem when she was first born because she had estrogen in her body that came from me.)

We were prescribed to treat this problem with Premarin cream for two weeks. After the two weeks, I noticed a change, but it eventually fused back together. We did a second round several months later and the same thing happened. In January, our pediatrician decided it was time for Peanut to see a urologist.

When I called for the appointment, I was surprised to find out there was only one pediatric urologist in our entire area and it would take about 3+ months to get an initial appointment. (Talk about job security and a whole lot of money....)

We finally had our appointment today and I have to admit I was really apprehensive about it. Thankfully, a dear friend offered to take Jelly Bean so twindada and I could take Peanut together to the appointment. Jelly Bean had four other little friends to play with so she had an absolute blast. We dropped Jelly Bean off at our friend's house and this was the first time that Jelly Bean was alone without Peanut and us. I suspected that Jelly Bean would cry as I walked out, but she didn't seem to mind at all. I jumped back into our truck to find Peanut sobbing and yelling, "Peanut, too!" She wanted to go play with sissy.

We get to the hospital and find our doctor's office. After a wait in the waiting room, we were taken back to an exam room for another short wait. Peanut did great - there were plenty of toys in both areas to keep her occupied and it was such a piece of cake. Twindada and I both were kind of relaxed as she walked around and played with the toys. I mean, c'mon! One baby and two parents? That is nuts! I wanted to take a nap, but thought I would get some stares...

The first doctor came in and examined her. I explained to Peanut (though she is still young to really comprehend) that he is a doctor and mommy said it was okay for him to look at her down there. After his exam, the urologist came in and examined her as well. He quickly showed us that she was really fused together and that when she urinated, it was likely that urine was filling in her vagina and then leaking out.

At this point, we were given two options: 1) Schedule an appointment for the OR, have her put under general anesthesia and have it opened up or 2) Open it up right there in the doctor's office. Ugh....neither? Is that a choice?

Unfortunately, there are couple health concerns that rise if it is not treated. First, she is susceptible to urinary tract infections especially since she is so closed up. Another issue is that if it is left untreated, in time mature skin cells will grow over and then it would require literally cutting through skin.

We decided to get it done right there in the office. We knew it was going to hurt her and I was shakey and upset about that. But we also knew that it was going to be really quick procedure and putting her under general anesthesia for a 30 second process didn't seem like the appropriate measure.

Twindada distracted her with a toy while I tickled her foot. The doctor said that if she was concentrating on being tickled, it would help a little. The doctor used a large, sterile cotton swab to pull it open. I couldn't watch.

I have seen these girls go through hospitalization the first twelve days and getting poked and prodded. I have seen them get shots and go through some uncomfortable things, but that did it for me. I tickled her foot and turned my head. She wailed. I was wailing inside.

Fortunately, the doctor was really quick and it was done. Peanut stood up on the exam table and she immediately wanted me. I had the biggest lump in my throat as I held her. I couldn't imagine what she went through, but surprisingly after a couple minutes she was fine. The doctor warned us that it could happen again, but by the time she is ten years old or so, her body will start making estrogen as she goes into puberty and it won't be a problem anymore. Ugh, again. I don't want to think about her having to go through this again, but we also know if it happens when she is a little older, he will do the procedure in the OR since she will be old enough to understand her surroundings.

We received our instructions for caring for her (Bacitracin for 7-10 days and then Premarin for another 7 days). As we left, Peanut received a stuffed animal. This made her very happy and she is sleeping with it as we speak.

I have to back up for a second and tell you all a side note. The entire time we were gone, Peanut talked about sissy. She would say, "Where sissy go?" And I would have to respond, "Sissy is playing with friends." She would then pipe up, "Peanut, too!" And I would have to say, "After we see the doctor, we will go get sissy." So, on the way to pick up Jelly Bean, Peanut says from her car seat, "I go see sissy!"

We arrived to find Jelly Bean having so much fun and Peanut ran in looking for her. Without saying a word, the girls embraced. I was so touched. They really missed each other. They hugged each other a couple times saying, "ah, sissy".

Once we got home everyone was exhausted. It seemed like an emotional roller coaster today and we are all glad it is over. Peanut still is experiencing some pain when she wets, but I have her on pain medication to help with it and hoping she recovers quickly. It definitely didn't slow her down because she has been running around here like normal being her little rambunctious self.

12 comments:

Michele said...

I just realized I hadn't been to your blog for a while, so I stopped by. Oh my goodness, I'm so sorry your little girl is having to go through these things! My heart cries for her too. It seems so unfair when these little ones have to suffer, but I'm glad she felt better after such a short time.

I think our twins are pretty close in age. Mine were born in December '06 and are now 2 1/2.

I am curious - do they actually call themselves Peanut and Jelly Bean (as in "Peanut, too!") or when they say it, do they use their given names?

twinmama said...

Hi Michele! Thanks for stopping by!

They usually refer to themselves by their given name, but they do know their nicknames and will respond by them. :)

Michele said...

I thought this was a hilarious coincidence - just after reading about Peanut's attachment to Jelly Bean, I reflected that my twins don't have a special affinity for each other. They play nicely together, but don't seem to notice much when the other's not around, at least not for a while.

Having said that, today Natalie woke up extra early, while her twin, my husband, and the rest of the kids were still asleep, so I took her with me on an outing. As we were arrived at our destination, Natalie siezed up with panic and cried, "My Noelle! Have to go get my Noelle!"

Dianna said...

oh .. you poor momma, and poor peanut! Boy, she's been through some rough stuff! Here's hoping things will work out!

Helene said...

Awwwww, my heart was aching just reading this so I can imagine what you must have experienced while this was happening. I remember when Bella was a baby and there were several times she needed steroid shots on her hemangioma on her arm and she would sob....it ripped my heart in half every time. It's so hard because they don't understand what's going on and you just want to take their pain away.

I hope she won't have to go through this procedure again.

I think it's absolutely adorable that your twins have such a strong attachment to one another. Neither of my sets of twins seem attached to the other. It surprised me with Garrett and Landon, being that they are the same gender. They could be separated and I don't think they'd even notice.

Kim said...

What an interesting post, although I'm so sorry it was about your little peanut. How precious our babies are to us, especially when they have to go through something awful like this. Loved the ending!

Jack & Aidan said...

Oh, that's awful -- I hate being with them at the doctor's office while something painful happens to them...poor little thing!

glitzen said...

Oh my goodness, I was holding my breath without realizing it as I read! Poor baby girl! I have never been good at procedures and I'm sorry to say I usually get very weepy and have a good cry later when all alone too! Cannot help it. Those are our babies, our hearts, walking around needing us to protect them.
I'm so glad it turned out ok. You made a good decision to get it done there. A hard but good decision. (((((hugs))))))

motheringmymiraclemultiples said...

I am so glad that the Peanut is doing better.....

My dad always called me Peanut when I was little.....

Jennifer said...

Oh my. It's been awhile since I visited and what a post to catch up on. Wow. Poor little thing. I had a lump in my throat the whole time while reading it. Couldn't they maybe just give her some gas to make her drowsy? Like at the dentist. They gave my twins gas when they had tubes put in their ears. They were 19 months.

casa da poesia said...

Yes!...

"Negema wangu binti"

Lisa C. said...

AAAWWWWW hope all is better now.. :( so sorry to hear she had to go through that...

I always hated when the docs had to do something to the girls too.. I hate that look they give you... like TRAITOR... lol..

and my girls are really close tooooo.. as soon as they are apart for like 5 minutes... they start asking for one another.. it's sooo cute.. sometimes they end up in different rooms and before you know it... lol..